Genetic testing:
Thomseno and Becker Congenital Myotonia
Expert centres:
Thomseno and Becker Congenital Myotonia – Europe
Congenital Paramyotonia – Europe
Patient organizations:
Organizations – Thomsen and Becker Congenital Myotonia
Organizations – Congenital Paramyotonia
Other useful links:
NORD – National Organization for Rare Disorders – USA